février 29, 2024Navigating Conversations With Your Children About Congenital CMV
Congenital CMV was a completely unknown risk to us until the devastating diagnosis of severe fetal infection struck us at 23 weeks into our second pregnancy. The news shattered our world, leaving us grappling with fear and uncertainty. But thanks to early detection and access to exceptional care and treatment, our daughter Georgia defied expectations and emerged into the world stronger than anyone predicted.
Georgia’s journey has been filled with multiple disabilities and challenges, all stemming from the brain differences caused by congenital CMV. Yet, she continues to amaze us by surpassing every hurdle and bringing immense joy to those fortunate enough to know her.
Experiencing the impact of congenital CMV firsthand has ignited an unyielding determination within us. We have become fervent advocates, committed to raising awareness, promoting prevention, and ensuring early detection and management of this all-too-common condition. We firmly believe that every family deserves the knowledge and care required to improve outcomes for their precious children.