Tag: CMV Research

Jasper’s Story

This spring, my husband, 2 year old son Finn and I welcomed Jasper into this crazy world. He was perfect and seemed to be very healthy. That’s why when we received the phone call that the newborn screening test was positive for CMV, we were confused, shocked, and honestly, really sad. The following week was really hard. Within a few days, we had gone from an easy breezy family of 4 (as easy breezy as it can be with a… Read more »

Reflecting on the 1st Year of a Universal cCMV Screening Program: The Nurse Practitioner Perspective

February 3, 2021 – In July 2019, Ontario became the first Canadian province (and the first region in the world) to begin screening all newborns for cCMV at birth as part of their hearing risk factor screening. Thank you to Andrea Baptista, Lisa Hicks and Alanna Webster, the incredible Nurse Practitioners who are organizing and facilitating the care for the babies who test positive, for their presentation yesterday. They shared key findings, successes and challenges from this novel cCMV screening… Read more »

Engaging Children in Active Learning at an Early Age

“The concept behind Active Learning is to create an environment that is easily accessible to all children, no matter what their challenges.” January 20, 2021 – It was an absolute pleasure to have Mimi Pruniski and Pat Jung on CMV Live to talk all about Active Learning! This is just a small taste of the whole presentation they have in store for the CMV Public Health and Policy Conference, which is scheduled for August 30 – September 1, 2021 in… Read more »

Provider Testing Practices for cCMV: Consistently Inconsistent

January 6, 2021 – Dr. Megan Pesch and Kate Wilson present the findings of their research on the medical decision-making and practices healthcare providers use to screen an infant for cCMV. About the presenters: Dr. Megan Pesch is a Developmental and Behavioral Pediatrician, originally from British Columbia, and now living in Ann Arbor Michigan. Dr. Pesch completed her medical training including medical school, residency, a masters in clinical research and fellowship at the University of Michigan where she is now… Read more »

The Use of Saliva Samples to Test for Congenital Cytomegalovirus (cCMV) Infection in Newborns

December 9, 2020 – Thank you to Dr. Abbey Sidebottom, Whitney Wunderlich and Dr. Mark R. Schleiss for delivering a fantastic presentation on the use of saliva samples for cCMV testing and their examination of false positives. It was the perfect way to wrap up the CMV-LIVE series for 2020! As always, thank you to our amazing partners at National CMV Foundation, NCHAM and Merck for making this series possible.

Universal CMV Screening Bill Introduced in Manitoba

November 25, 2020 – MLA Uzoma Asagwara introduces a historic bill that would make universal newborn CMV screening mandatory in the province of Manitoba. It’s time to #StartScreening across Canada! To find out how you can support this bill or lead advocacy efforts in your region, please contact us at info@cmvcanada.com

Pragmatic Skills and Mental Health in Children with cCMV Infection and Cochlear Implants

November 25, 2020 – Thank you to Dr. Ulrika Löfkvist for delivering such an informative and engaging presentation! Ulrika Löfkvist, PhD is and Associate Professor and researcher in the Department of Public Health and Caring Sciences at Uppsala University, Sweden. We also want to thank our wonderful partners at National CMV Foundation, NCHAM and Merck for making this series possible.

The Florida CMV Collaborative: Another Approach to Impacting Change

November 11, 2020 – Thank you to Cedric Pritchett, Janel Cosby and Frances Saccoccio for the wonderful presentation today. The Florida CMV Collaborative is a working group of vested stakeholders concerned and committed to advancing better outcomes for children in Florida with congenital CMV. They are a true testament to the power of passionate advocacy and collaboration. Thanks to their tireless efforts, they have made great strides in educational awareness, research and legislative advocacy. Check out their presentation to learn… Read more »

CMV in Pregnancy: Women’s Choice and Attitudes Regarding Screening and Prevention Behaviors

October 28, 2020 – Thank you to Dr. Isabelle Boucoiran for presenting her latest research findings about women’s attitudes regarding CMV testing and prevention! Women want the opportunity to be screened. Parents have a right to know. Dr. Boucoiran is gynecologist-obstetrician and a Clinical Associate Professor at Université de Montréal. She is also the co-director of the Women and Children Infectious Diseases Centre at the CHU Sainte-Justine, a provincial referral centre for congenital infections. She is a member of the… Read more »

Spreading CMV Awareness: How You Can Get Involved In Your Community

September 30, 2020 – Amanda Devereaux and Kim Hill from National CMV Foundation delivered a fantastic presentation for us filled with helpful tips and great ideas. We are so grateful to have such wonderful partners in the CMV community! You definitely want to check this one out. For more information about the amazing work being done in the U.S., visit: www.nationalcmv.org and follow them on Facebook, Instagram and Twitter. Background on the presenters: Amanda Devereaux is the Program Director for… Read more »