Tag: Advocacy

CMV Parent Advocacy – with Lisa and T.J. Robinson

June 23, 2020 – Congenital CMV was a completely unknown risk to Lisa & T.J. Robinson before they received the shocking diagnosis of severe fetal infection at 23 weeks into their second pregnancy. Because of early detection and access to excellent care and treatment options, their daughter, Georgia, was born much stronger than doctors predicted. Since experiencing their own journey with cCMV, the Robinsons have become determined to advocate for greater awareness, prevention, detection and management of cCMV. They are… Read more »

National CMV Foundation – Interview with Kristen Spytek, President and Co-Founder

June 9, 2020 – We had the great pleasure of speaking with Kristen Hutchinson Spytek, President & Co-Founder of National CMV Foundation about their history, CMV Awareness Month, advocacy and screening. Make sure to follow @nationalcmv on social media and visit www.nationalcmv.org to find out more about the incredible work they are doing in the U.S.!

Ava Lynn’s Story

We found out that we were expecting a baby in January of 2016. Our due date was for September 2016. We were so excited! My pregnancy was going very well. I was hungry. Tired. Grumpy. But embracing my cute baby bump.  On April 18, we went for our 20-week anatomy scan. To be honest, I wasn’t even concerned about not having a healthy baby. Everyone around me always had healthy babies. During the ultrasound, they found something and said they… Read more »

Interview with Paediatric Infectious Disease Specialist, Dr. Soren Gantt

June 3, 2020 – We were thrilled to have Paediatric Infectious Disease Specialist and CMV expert, Dr. Soren Gantt, on the show. We spoke about his research on CMV screening, the impact of COVID-19 on the CMV community, the CMV Public Health and Policy Conference, and more!

Maddison’s Story

Pregnant with my second child, I thought I had it in the bag.  I had been through this before. I had endured 26-hour labour that ended up in a c-section, got through those postpartum blues and exclusively breastfed through thrush and nursing strikes. This time around, my learning curve was going to be much smaller.  Our second daughter arrived in early May and those first two weeks I had with her were ignorant bliss. I truly understood what people mean… Read more »