Tag: Advocacy

CMV in Pregnancy: Women’s Choice and Attitudes Regarding Screening and Prevention Behaviors

October 28, 2020 – Thank you to Dr. Isabelle Boucoiran for presenting her latest research findings about women’s attitudes regarding CMV testing and prevention! Women want the opportunity to be screened. Parents have a right to know. Dr. Boucoiran is gynecologist-obstetrician and a Clinical Associate Professor at Université de Montréal. She is also the co-director of the Women and Children Infectious Diseases Centre at the CHU Sainte-Justine, a provincial referral centre for congenital infections. She is a member of the… Read more »

Spreading CMV Awareness: How You Can Get Involved In Your Community

September 30, 2020 – Amanda Devereaux and Kim Hill from National CMV Foundation delivered a fantastic presentation for us filled with helpful tips and great ideas. We are so grateful to have such wonderful partners in the CMV community! You definitely want to check this one out. For more information about the amazing work being done in the U.S., visit: www.nationalcmv.org and follow them on Facebook, Instagram and Twitter. Background on the presenters: Amanda Devereaux is the Program Director for… Read more »

CMV-PHP LIVE Launch with Dr. Jessica Dunn

September 16, 2020 – It was an absolute pleasure to kick off the CMV Public Health and Policy Conference Live series with Dr. Jessica Dunn! Dr. Dunn is a Pediatric Infectious Disease Specialist and was one of the key members of the team responsible for Newborn Screening Ontario‘s universal CMV screening program. Starting Wednesday, September 16, 2020, we will be bringing you live presentations bi-weekly at 12:00 pm EST. Tune in to learn about all of the latest in CMV… Read more »

CMV Parent Advocacy – with Lisa and T.J. Robinson

June 23, 2020 – Congenital CMV was a completely unknown risk to Lisa & T.J. Robinson before they received the shocking diagnosis of severe fetal infection at 23 weeks into their second pregnancy. Because of early detection and access to excellent care and treatment options, their daughter, Georgia, was born much stronger than doctors predicted. Since experiencing their own journey with cCMV, the Robinsons have become determined to advocate for greater awareness, prevention, detection and management of cCMV. They are… Read more »

CMV Action UK – Interview with Angela Andrews

June 11, 2020 – We were so grateful to have Angela Andrews join us to chat about the great work that is being done overseas. Angela is a CMV mom, a midwife and a Trustee with CMV Action UK. To learn more about the great work that is being done in the UK, visit: www.cmvaction.org.uk and don’t forget to follow them on Facebook and Twitter!

National CMV Foundation – Interview with Kristen Spytek, President and Co-Founder

June 9, 2020 – We had the great pleasure of speaking with Kristen Hutchinson Spytek, President & Co-Founder of National CMV Foundation about their history, CMV Awareness Month, advocacy and screening. Make sure to follow @nationalcmv on social media and visit www.nationalcmv.org to find out more about the incredible work they are doing in the U.S.!

Ava Lynn’s Story

We found out that we were expecting a baby in January of 2016. Our due date was for September 2016. We were so excited! My pregnancy was going very well. I was hungry. Tired. Grumpy. But embracing my cute baby bump.  On April 18, we went for our 20-week anatomy scan. To be honest, I wasn’t even concerned about not having a healthy baby. Everyone around me always had healthy babies. During the ultrasound, they found something and said they… Read more »

Interview with Pediatric Infectious Disease Specialist, Dr. Soren Gantt

June 3, 2020 – We were thrilled to have Pediatric Infectious Disease Specialist and CMV expert, Dr. Soren Gantt, on the show. We spoke about his research on CMV screening, the impact of COVID-19 on the CMV community, the CMV Public Health and Policy Conference, and more!