Lindsay and Oliver CraigParent Advisory Committee
After being blindsided by a cCMV diagnosis in 2018, Lindsay and Oliver are dedicated to improving outcomes for families affected by CMV. They want to change the system so that other parents do not have to go through the same experience they did. Lindsay and Oliver successfully advocated for their newborn daughter to be tested and treated after she was diagnosed with hearing loss. Finding support from the CMV community was vital to their daughter’s outcome, and that is why they are passionate advocates for cCMV in Canada. Lindsay holds a Bachelor of Business Administration and is a Human Resources Professional. She brings experience in people resources from the not for profit sector.
Lisa and T.J. RobinsonParent Advisory Committee
Congenital CMV was a completely unknown risk to Lisa & T.J. before they received the shocking diagnosis of severe fetal infection at 23 weeks into their second pregnancy. Because of early detection and access to excellent care and treatment options, their daughter Georgia was born much stronger than doctors predicted. Despite multiple disabilities and challenges due to the brain differences caused by cCMV, Georgia continues to exceed expectations and spark joy for those around her. Since experiencing their own journey with cCMV, the Robinsons have become determined to advocate for greater awareness, prevention, detection and management of this common condition. They are driven by the belief that every family deserves the knowledge and care that is needed to improve outcomes for each child. Lisa is a Speech-Language Pathologist working in early education. T.J. has a degree in Mechanical Engineering, and together they own & operate a small business in Innisfail, specializing in flooring and renovation services.