Parent Advisory Committee

OUR TEAM
Lindsay and Oliver Craig

Lindsay and Oliver Craig

Alberta

After being blindsided by a cCMV diagnosis in 2018, Lindsay and Oliver are dedicated to improving outcomes for families affected by CMV. They want to change the system so that other parents do not have to go through the same experience they did. Lindsay and Oliver successfully advocated for their newborn daughter to be tested and treated after she was diagnosed with hearing loss. Finding support from the CMV community was vital to their daughter’s outcome, and that is why they are passionate advocates for cCMV in Canada. Lindsay holds a Bachelor of Business Administration and is a Human Resources Professional. She brings experience in people resources from the not for profit sector.

Lisa and T.J. Robinson

Lisa and T.J. Robinson

Alberta

Congenital CMV was a completely unknown risk to Lisa & T.J. before they received the shocking diagnosis of severe fetal infection at 23 weeks into their second pregnancy. Because of early detection and access to excellent care and treatment options, their daughter Georgia was born much stronger than doctors predicted. Despite multiple disabilities and challenges due to the brain differences caused by cCMV, Georgia continues to exceed expectations and spark joy for those around her. Since experiencing their own journey with cCMV, the Robinsons have become determined to advocate for greater awareness, prevention, detection and management of this common condition. They are driven by the belief that every family deserves the knowledge and care that is needed to improve outcomes for each child. Lisa is a Speech-Language Pathologist working in early education. T.J. has a degree in Mechanical Engineering, and together they own & operate a small business in Innisfail, specializing in flooring and renovation services.

William Jones

William Jones

Ontario

William found out about cCMV on the 14th day of his daughter's life. A new blood screen program determined that his daughter was born with the virus and suffered from severe hearing loss. She was the first through the Ontario screening program and that brought a significant learning curve alongside an extreme amount of uncertainty. William wants to help educate and eradicate this terrible virus. He is deeply involved in the medical device industry, a Professional Engineer, and holds a Masters of Business Administration.

Mike George

Mike George

New Brunswick

Mike leads SoaringFamilies.com, an organization he co-founded to empower families and individuals facing disabilities or medical challenges with the confidence and knowledge to create more balance, energy & freedom in their lives. He is also a technology leader, acclaimed author, and international speaker. Most importantly, he is father to Ben, who was born with congenital CMV. Despite being told he would never walk, talk or go to school, Ben found a way to become a university graduate and inspires Mike every day to build a truly inclusive world.