We are working hard to advocate for a future where every Canadian newborn is tested for CMV, because the reality is – screening saves lives.
See below for a presentation we recently delivered to Alberta Health Services and learn more about why we are advocating for Universal Newborn CMV Screening:
There is a lot of bad news when it comes to CMV, but here is the good news:
- CMV is detectable at birth.
- Treatments are available, if CMV is caught early.
- Treatment leads to significantly better outcomes for infected infants.
- Effective screening tests exist.
- Screening is affordable.
- Screening leads to cost savings for the entire system.
We need your help. Join us in telling local policy makers that CMV screening matters. Too many babies are going undiagnosed. Too many babies are dying. We need our whole country to come together and say enough is enough. It’s time to #screen4cmv. It’s time to #stopcmv
We want to hear from you!
If you have a child with CMV, your story deserves to be heard and we want to share it. To share your story or to learn more about how you can make a difference, please contact us at: info@cmvcanada.com
Send a letter to your local MLA
We even created a template to help you get started. Please click here to download and fill in a word template!
CMV Screening Across Canada
Hover over a province on the map below to find out more about CMV screening in that region.
Volunteers play a vital role in any organization and CMV Canada is open to accept volunteers in every position possible. If you are interested in helping out, please fill out the contact form below and we will be in touch.
Join a Committee
Provincial Family Advisory Committees
Families are at the heart of what we do. We believe it is absolutely essential to include CMV parents and caregivers in everything we do. We need families from across Canada to oversee advocacy initiatives in their province and offer their valuable input to help ensure that our organization is helping those affected by cCMV. Join your provincial family advisory committee and make sure your voice is heard!
Medical Advisory Committee
Are you a medical professional with a passion for helping Canadian families? Do you know someone who is? We are always looking for individuals with medical expertise to advise on the scientific and policy side of what we do.
Distribute Educational Materials and Resources
CMV Canada has developed resources for patients, healthcare providers, educators and community organizations to help raise awareness and share information about congenital CMV. If you would like to help distribute these materials in your community, clinic, daycare, school, etc. please contact us and we will get you started.
Organize a Fundraising Event
Do you love planning events? CMV Canada is always looking for individuals and groups to help organize local events and fundraisers. We would love to work with you to plan an event in your region!
Skills-Based Volunteering
Do you have skills in marketing, translation, social media, or other areas of expertise? Do you have other ideas about how you could contribute? Contact us with your suggestions and how you can help. We would love to hear from you!
If you are interested in any of the opportunities listed above, or if you have other ideas about how you can help CMV Canada, please fill out the form below and we will contact you as soon as possible.
CMV Awareness Month
June is CMV Awareness Month around the world. Thank you to everyone who spread the word about how to #ReduceYourRisk throughout CMV Awareness Month 2022.
Stay tuned for more details about next year’s theme and activities. In the meantime, here are a few ways that you can make a difference:
- Write To Your Local MLA – Let legislators and policy makers know that it’s time to #screen4cmv Click to download our letter template to get started. Contact info@cmvcanada.com for more information about how to contact local law makers in your region or if you have any questions.
- Share Your CMV Story – One of the most effective and powerful ways to raise awareness is by sharing your stories. You can read about other Canadian families who have shared their CMV journeys on our blog. To share your story, please contact info@cmvcanada.com
- Host a Fundraiser – Create an online fundraiser in seconds using Facebook Fundraisers. Click here to get started.
Walk, Wheel or Wiggle for CMV
On June 18, 2022, CMV Canada hosted the second edition of our national awareness and fundraising event for CMV – Walk, Wheel or Wiggle for CMV. The CMV community came together to make the event a success. Thanks to our amazing parents, partners, sponsors and donors, we raised $101,945!!
Wherever you are, and whatever your abilities are – we can all make a difference. We can all Walk, Wheel or Wiggle for CMV!
If you are interested in getting involved by helping to organize, sponsor or participate in Walk, Wheel or Wiggle for CMV in 2023, please contact info@cmvcanada.com for more information.
Le Classique
Western Canada’s Largest Outdoor 3-on-3 Ball Hockey Tournament will be coming back in February 2023! Stay tuned for more details.
- The Research Institute of the McGill University Health Centre (RI-MUHC) is looking for women interested in a clinical trial for a vaccine against cytomegalovirus (CMV)!
- L’Institut de recherche du Centre universitaire de santé McGill (IR-CUSM) est à la recherche de femmes intéressées par un essai clinique pour un vaccin contre le cytomégalovirus (CMV) !
Participate in Vaccine Trials
The Canadian CMV Foundation was established with a vision in mind – to raise funds for research, to develop a vaccine and eradicate congenital CMV.
There is currently no vaccine available for CMV, but pharmaceutical companies have been making promising developments in this field.
Clinical research studies are now actively recruiting participants for Phase 3 CMV vaccine trials in 5 cities across Canada: Toronto, Burlington, Quebec, Montreal and Mirabel.
To learn more about these clinical trials, please contact Centricity Research:
www.lmcmanna.com
join@centricityresearch.com
1-833-323-JOIN
And check out these resources:
To learn more about mRNA vaccines and Moderna’s vaccine development, click here.
