It’s time to start screening for CMV across Canada!

We are working hard to advocate for a future where every Canadian newborn is tested for CMV, because the reality is – screening saves lives.

See below for a presentation we recently delivered to Alberta Health Services and learn more about why we are advocating for Universal Newborn CMV Screening:

There is a lot of bad news when it comes to CMV, but here is the good news:

  • CMV is detectable at birth.
  • Treatments are available, if CMV is caught early.
  • Treatment leads to significantly better outcomes for infected infants.
  • Effective screening tests exist.
  • Screening is affordable.
  • Screening leads to cost savings for the entire system.

We need your help. Join us in telling local policy makers that CMV screening matters. Too many babies are going undiagnosed. Too many babies are dying. We need our whole country to come together and say enough is enough. It’s time to #screen4cmv. It’s time to #stopcmv

We want to hear from you!

If you have a child with CMV, your story deserves to be heard and we want to share it. To share your story or to learn more about how you can make a difference, please contact us at: info@cmvcanada.com

Send a letter to your local MLA

We even created a template to help you get started. Please click here to download and fill in a word template!

CMV Screening Across Canada

Hover over a province on the map below to find out more about CMV screening in that region.

Volunteers play a vital role in any organization and CMV Canada is open to accept volunteers in every position possible. If you are interested in helping out, please fill out the contact form below and we will be in touch.

Join a Committee

Provincial Family Advisory Committees

Families are at the heart of what we do. We believe it is absolutely essential to include CMV parents and caregivers in everything we do. We need families from across Canada to oversee advocacy initiatives in their province and offer their valuable input to help ensure that our organization is helping those affected by cCMV. Join your provincial family advisory committee and make sure your voice is heard!

Medical Advisory Committee

Are you a medical professional with a passion for helping Canadian families? Do you know someone who is? We are always looking for individuals with medical expertise to advise on the scientific and policy side of what we do.

Distribute Educational Materials and Resources

CMV Canada has developed resources for patients, healthcare providers, educators and community organizations to help raise awareness and share information about congenital CMV. If you would like to help distribute these materials in your community, clinic, daycare, school, etc. please contact us and we will get you started.

Organize a Fundraising Event

Do you love planning events? CMV Canada is always looking for individuals and groups to help organize local events and fundraisers. We would love to work with you to plan an event in your region!

Skills-Based Volunteering

Do you have skills in marketing, translation, social media, or other areas of expertise? Do you have other ideas about how you could contribute? Contact us with your suggestions and how you can help. We would love to hear from you!

If you are interested in any of the opportunities listed above, or if you have other ideas about how you can help CMV Canada, please fill out the form below and we will contact you as soon as possible.

Le Classique

Western Canada’s Largest Outdoor 3-on-3 Ball Hockey Tournament is coming back!

After a year away, we are thrilled to announce that CMV Canada’s biggest annual fundraising event will be taking place January 28 and 29, 2022, at the Centre Culturel Franco-Manitobain in Saint Boniface, Manitoba.

Learn More

CMV Public Health & Policy Conference

We are thrilled to be hosting the CMV Public Health & Policy Conference in Canada for the first time ever!

Join us August 21-23, 2022 in the beautiful city of Ottawa for 3 days of enlightening and engaging activities with some of the world’s top experts. Meet other parents from across Canada and the globe to share experiences and learn about what is being done in the field of CMV.

The goal of the Congenital CMV Conference is to present the latest research on diagnosis and treatment, raise awareness, delineate prevention efforts, provide information about early intervention options, and disseminate family support resources in an effort to reduce the number of babies born with CMV and connect families affected by CMV with the resources they need to improve their quality of life.

We want to get as many Canadian CMV parents together as possible. Funding may be available to cover the cost of travel and accommodations for your family. If you are interested in attending, please contact info@cmvcanada.com for more information.

Learn More

CMV Awareness Month

Throughout the month of June 2021, the Canadian CMV Foundation teamed up with the National CMV Foundation, CMV Action UK and groups all around the world to raise awareness. Our theme was Screen For CMV. We highlighted stories from families across Canada who have been impacted by CMV and expert testimonials about why now is the time to #screen4cmv

Although CMV Awareness Month has wrapped up for this year, you can still help advocate for CMV screening in your region until CMV Awareness Month 2022.

  • Write To Your Local MLA – Let legislators and policy makers know that it’s time to #screen4cmv Click to download our letter template to get started. Contact info@cmvcanada.com for more information about how to contact local law makers in your region or if you have any questions.
  • Share Your CMV Story – One of the most effective and powerful ways to raise awareness is by sharing your stories. You can read about other Canadian families who have shared their CMV journeys on our blog. To share your story, please contact info@cmvcanada.com
  • Host a Fundraiser – Create an online fundraiser in seconds using Facebook Fundraisers. Click here to get started.

Walk, Wheel or Wiggle for CMV

In June 2021, we were thrilled to host Canada’s first national fundraising and awareness event for CMV. Thanks to our amazing parents, partners, sponsors and donors, we raised $96,170!! Those funds will all be invested in CMV research, advocacy, awareness initiatives and supporting families.

Wherever you are, and whatever your abilities are – we can all make a difference. We can all Walk, Wheel or Wiggle for CMV!

If you are interested in sponsoring or participating in Walk, Wheel or Wiggle for CMV in 2022, please contact info@cmvcanada.com for more information.

CMV Parents & Caregivers – Complete a Brief Survey to Help Improve Health Services For Families Affected by cCMV

Congenital CMV (cCMV) is the most common congenital infection affecting the pediatric population in British Columbia. Early diagnosis in infants and treatment can substantially improve hearing and developmental outcomes. Currently, care for mothers and infants affected by cCMV in most places is provided in distinct silos with obstetric care and pediatric care provided separately.

A group of physicians from BC Women’s and BC Children’s Hospital are developing a joint clinic, in partnership with community providers, where both obstetricians and pediatricians will work together to provide more coordinated care for the diagnosis, management, and support in access to care for both mothers with possible infections and infants with congenital CMV and other perinatal infections.

We are looking for interested families and caregivers with experience caring for children affected by cCMV to provide feedback on the current models of care and input on what we can improve, including access and quality of care, unmet needs in the way health services are currently delivered and recommendations for improving cCMV care; we are focused on BC but want to draw from the experience of families from elsewhere in Canada as well. This is an important quality of care initiative and the information gathered from this feedback will be used to inform and strengthen the development of a multidisciplinary program between BC Women’s and BC Children’s Hospital for cCMV care that aims to improve care and support to families as it relates to cCMV.

To complete the survey, please click on the link below:

Complete Survey

Participate in Vaccine Trials

A clinical research study is now actively recruiting participants for Phase 3 CMV vaccine trials at 4 sites in Canada:

To learn more about these clinical trials, please contact LMC Manna Research:

www.lmcmanna.com

research@lmcmanna.com

1-833-323-JOIN

And check out these resources:

Download English BrochureDownload French Brochure

To learn more about mRNA vaccines and Moderna’s vaccine development, click here.