This spring, my husband, 2 year old son Finn and I welcomed Jasper into this crazy world. He was perfect and seemed to be very healthy. That’s why when we received the phone call that the newborn screening test was positive for CMV, we were confused, shocked, and honestly, really sad. The following week was really hard. Within a few days, we had gone from an easy breezy family of 4 (as easy breezy as it can be with a… Read more »
Hazel, our second daughter, was born August 15th, 2019. We felt so fortunate. The delivery was smooth and there were no complications during the entire pregnancy. A week after Hazel was home, we went for her hearing test at a local church. She got a ‘refer’ on both ears after multiple attempts. This didn’t worry me much because my first daughter hadn’t passed on one ear the first time she did the test, and then she proceeded to pass the… Read more »
February 3, 2021 – In July 2019, Ontario became the first Canadian province (and the first region in the world) to begin screening all newborns for cCMV at birth as part of their hearing risk factor screening. Thank you to Andrea Baptista, Lisa Hicks and Alanna Webster, the incredible Nurse Practitioners who are organizing and facilitating the care for the babies who test positive, for their presentation yesterday. They shared key findings, successes and challenges from this novel cCMV screening… Read more »
“The concept behind Active Learning is to create an environment that is easily accessible to all children, no matter what their challenges.” January 20, 2021 – It was an absolute pleasure to have Mimi Pruniski and Pat Jung on CMV Live to talk all about Active Learning! This is just a small taste of the whole presentation they have in store for the CMV Public Health and Policy Conference, which is scheduled for August 30 – September 1, 2021 in… Read more »
January 6, 2021 – Dr. Megan Pesch and Kate Wilson present the findings of their research on the medical decision-making and practices healthcare providers use to screen an infant for cCMV. About the presenters: Dr. Megan Pesch is a Developmental and Behavioral Pediatrician, originally from British Columbia, and now living in Ann Arbor Michigan. Dr. Pesch completed her medical training including medical school, residency, a masters in clinical research and fellowship at the University of Michigan where she is now… Read more »
December 9, 2020 – Thank you to Dr. Abbey Sidebottom, Whitney Wunderlich and Dr. Mark R. Schleiss for delivering a fantastic presentation on the use of saliva samples for cCMV testing and their examination of false positives. It was the perfect way to wrap up the CMV-LIVE series for 2020! As always, thank you to our amazing partners at National CMV Foundation, NCHAM and Merck for making this series possible.
November 25, 2020 – Thank you to Dr. Ulrika Löfkvist for delivering such an informative and engaging presentation! Ulrika Löfkvist, PhD is and Associate Professor and researcher in the Department of Public Health and Caring Sciences at Uppsala University, Sweden. We also want to thank our wonderful partners at National CMV Foundation, NCHAM and Merck for making this series possible.
November 11, 2020 – Thank you to Cedric Pritchett, Janel Cosby and Frances Saccoccio for the wonderful presentation today. The Florida CMV Collaborative is a working group of vested stakeholders concerned and committed to advancing better outcomes for children in Florida with congenital CMV. They are a true testament to the power of passionate advocacy and collaboration. Thanks to their tireless efforts, they have made great strides in educational awareness, research and legislative advocacy. Check out their presentation to learn… Read more »
October 28, 2020 – Thank you to Dr. Isabelle Boucoiran for presenting her latest research findings about women’s attitudes regarding CMV testing and prevention! Women want the opportunity to be screened. Parents have a right to know. Dr. Boucoiran is gynecologist-obstetrician and a Clinical Associate Professor at Université de Montréal. She is also the co-director of the Women and Children Infectious Diseases Centre at the CHU Sainte-Justine, a provincial referral centre for congenital infections. She is a member of the… Read more »
October 14, 2020 – We had the great pleasure of catching up with audiologist and advisor to CMV Canada, Marie Pigeon. She gave insights into an audiologist’s perspective on CMV, Ontario’s screening programs, and the beautiful city of Ottawa (where we will be meeting next summer for the CMV Public Health & Policy Conference!). Marie provides support in the development and implementation of program protocols, training, and continuous quality improvement for the Ontario Infant Hearing Program. She is proud to… Read more »