News & Articles

Spreading CMV Awareness: How You Can Get Involved In Your Community

September 30, 2020 – Amanda Devereaux and Kim Hill from National CMV Foundation delivered a fantastic presentation for us filled with helpful tips and great ideas. We are so grateful to have such wonderful partners in the CMV community! You definitely want to check this one out. For more information about the amazing work being done in the U.S., visit: www.nationalcmv.org and follow them on Facebook, Instagram and Twitter. Background on the presenters: Amanda Devereaux is the Program Director for… Read more »

CMV-PHP LIVE Launch with Dr. Jessica Dunn

September 16, 2020 – It was an absolute pleasure to kick off the CMV Public Health and Policy Conference Live series with Dr. Jessica Dunn! Dr. Dunn is a Pediatric Infectious Disease Specialist and was one of the key members of the team responsible for Newborn Screening Ontario‘s universal CMV screening program. Starting Wednesday, September 16, 2020, we will be bringing you live presentations bi-weekly at 12:00 pm EST. Tune in to learn about all of the latest in CMV… Read more »

Interview with Pediatric Infectious Disease Specialist, Dr. Fatima Kakkar

Tuesday, August 18, 2020 – We are so grateful to have Dr. Fatima Kakkar on our team! In this video, we chatted about the amazing work being done at the Centre Hospitalier Universitaire Sainte-Justine, the important research being conducted by Dr. Kakkar and her colleagues and the impact of COVID-19 on the CMV community. In addition to being on CMV Canada’s medical advisory commitee, Dr. Kakkar is an infectious disease pediatrician at the Centre Hospitalier Universitaire Sainte-Justine as well as… Read more »

Emmett’s Story

Emmett was born in January 2018 at 40 weeks after a relatively uncomplicated pregnancy. His hearing was tested within the first 24 hours, and while his right ear passed, he got a ‘refer’ result for his left ear. Otherwise, he was perfectly healthy.  We were told it’s normal to get a ‘refer’ during the infant hearing screening, particularly with C-section babies, and were advised to follow up a month later.   At one month old, Emmett again got a ‘refer’ in… Read more »

Ontario’s Universal CMV Screening Program – Interview with Dr. Jason Brophy

July 21, 2020 – Dr. Brophy is a Pediatric Infectious Disease Specialist with the Children’s Hospital of Eastern Ontario and the University of Ottawa, and a member of CMV Canada’s medical advisory committee. Rob and Jason chatted about Ontario’s Universal CMV Screening Program, the impacts of COVID-19 and the upcoming CMV Public Health and Policy Conference and webinar series.

Hannah’s Story

Hannah was born May 15, 2010.  It started off as a normal pregnancy. I was showing to be a lot smaller than I was with my first, which pushed my OB to order a few extra ultrasounds. These ultrasounds showed that our child’s head was small for her age. They said maybe it was normal, maybe it was this or that, but not to be too alarmed at 36 weeks. I ended up going for an ultrasound one early morning in… Read more »

CMV Parent Advocacy – with Lisa and T.J. Robinson

June 23, 2020 – Congenital CMV was a completely unknown risk to Lisa & T.J. Robinson before they received the shocking diagnosis of severe fetal infection at 23 weeks into their second pregnancy. Because of early detection and access to excellent care and treatment options, their daughter, Georgia, was born much stronger than doctors predicted. Since experiencing their own journey with cCMV, the Robinsons have become determined to advocate for greater awareness, prevention, detection and management of cCMV. They are… Read more »

Newborn CMV Screening – CMV Story with William Jones

June 18, 2020 – It was such a pleasure speaking with William Jones about his family’s journey with CMV. William’s daughter, Francesca, was the first baby identified with CMV thanks to Ontario’s new screening program. The province recently became the first jurisdiction in the world to implement universal CMV screening. This means that every newborn is now tested for CMV! Early detection and intervention is crucial when it comes to CMV and hearing loss. It’s time to start screening in… Read more »

Maeve’s Story

On August 15, 2018, our family welcomed Maeve to the world. I was induced at just over 41 weeks. It was an uncomplicated pregnancy and a smooth labour that had our sweet daughter in our arms just a few hours after being induced. As part of the normal newborn screening program in Ontario, Maeve had her hearing screening the morning after she was born. Our province provides universal newborn hearing screening to detect newborn babies with any potential permanent hearing… Read more »

Grace’s Story

After a mostly uneventful pregnancy, Grace came rushing into the world in the middle of the night in late November, 2012 at 38.5 weeks. She was tiny, but she had this full head of black hair which surprised us all! The “mostly” uneventful pregnancy included one hiccup – at Grace’s 20-week scan, she had a slightly enlarged kidney and an echogenic bowel. The OB said these were not things to worry about, and an ultrasound would be performed on Grace… Read more »

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